I met the OstoSolutions team at the 2013 United Ostomy Associations of America (UOAA) conference, and I am sufficiently intrigued by their Ostomy Pouch Disposal Seals to share their information with you. Please watch the videos and read the excerpts from the company’s website before you read my personal opinions, or this will make no sense and you might think I’m crazy.
On their main website, you can find information and testimonials about their company and product. Their YouTube channel shows you how the seals can be used, and I admit that I reacted strongly the first time I saw these. The idea behind these is almost unbelievable, but it makes sense when you think about it. I’ll provide the basics here, just in case you’re not feeling ambitious.
OstoSolutions Ostomy Pouch Disposal Seal is an odor-control product that seals closed-end and drainable ostomy pouches. The seal is inserted into the coupling opening of any used two-piece closed-end ostomy pouch or used drainable (with Velcro® clipless technology) ostomy pouch so you can dispose of the used pouch in a 100% odor-proof manner.
The OstoSolutions™ Ostomy Pouch Disposal Seal, patent pending, is the only method on the market today that seals the contents of used ostomy pouches in a 100% odor-proof manner. No other method is designed specifically for this purpose, and none of the makeshift methods (black zipper bags, food storage bags) enable airtight, odorless disposal. A shorter change time means less odor: the Disposal Seal is designed to allow users to change and seal the used pouch for disposal in less than twenty seconds. A toilet is not needed for changing the pouch, and by enabling an odor-free disposal, the Disposal Seal ensures discretion no matter where the change is made.
He’s serious about changing your pouch anywhere. He lives in Florida and successfully changes his pouch in his car. Even in the heat, evidently the seal works.
Right up front, I should mention that their Ostomy Pouch Disposal Seal seems most useful for colostomates who use disposable pouches on a daily basis. I have an ileostomy, so my use for this product is more limited. I used it when I went out hunting, and I hope to eventually use it when I go canoeing or kayaking. When I was hunting, I used one of these when my pouch was suddenly very full thanks to too much coffee. I didn’t want to scare the deer away, and they’re pretty sensitive to smell. I used a seal and stuffed the used bag in my pocket because I am brave and I trusted Johnnie’s testimony. I didn’t tell anybody in my hunting party, and the seal stayed intact and kept me odor-free until I could stash it in a trash bag. Now I want to use these seals when I eventually go out on boats or camping because they’re discrete and I really don’t want to empty my pouch and risk any mess at all. I struggle with odor issues all the time, but when I’m at home I always have deodorizer drops accessible. When I’m out trying to be adventurous, I like the idea of an odor control/disposal solution that enables me to be a bit lazy and sneaky. I’ve heard a few people concerned about disposing of closed-end pouches at work or school and they can’t find any discreet way to handle their ostomy. I’m going to refer them to OstoSolutions whenever I can. There is nothing like these seals, and I’m impressed.
If you’re interested in learning more, getting samples, or seeing updates, here are some ways you can find OstoSolutions:
Main Website (http://www.ostosolutions.com/default.asp), YouTube (http://www.youtube.com/user/OstoSolutions), Facebook (https://www.facebook.com/Ostosolutions), and Twitter (@OstoSolutions).
I encourage you to read Johnnie’s story here, even though this is a long blog entry. He enjoys so many activities and his confidence is contagious!
OstoSolutions was founded in 2012, on the inspiration of Johnnie Cason to improve the quality of life for ostomy patients. In recognizing the need for a more convenient, discreet means of disposal of used ostomy pouches, Cason designed and developed a 100% odor-proof solution, making life more full and enjoyable for those living with ostomy.
In 1980, Johnnie Cason was a healthy 21 year old college student at Florida State University, a junior pursuing an accounting degree. He started having abdominal pain, and was quickly diagnosed with a grapefruit-sized pelvic tumor, deemed inoperable. After months of chemotherapy and two weeks of radiation to his pelvic area, a blockage was discovered in his small bowel, related to the tumor. As soon as he healed from the surgery, the blockage needed to be removed. Radiation was restarted, resulting in 40 percent more radiation than is typically used. At the same time, a new regimen of chemotherapy was utilized since the first combination of drugs was not effective.Now eight months into his treatment, Johnnie was told by his doctors that the treatments had failed and that he had only three months to live. Despite this prognosis, Johnnie never gave up hope and continued on with chemotherapy. Finally, after a year of chemotherapy, Johnnie received the first positive news since being diagnosed. All that remained of the tumor was scar tissue. The recovery from treatment was slow, the road back to health was hard, but Johnnie was alive and determined to pick back up where he left off. He graduated FSU with an accounting degree and began his CPA career; he married, and despite having been told he wouldn’t be able to have children, had two daughters. Johnnie did things physically to push his body, including pursuing racquetball aggressively at the amateur level; 18 months after having been told he had 90 days to live, he came in second in Florida’s State Racquetball Championship.
Shortly after ending treatment, Johnnie became involved with the American Cancer Society counseling cancer patients, and as a camp counselor at ROCK (Reach Out to Cancer Kids) Camp in Florida. Inspired by the courage and determination of these children, he created childhood cancer programs for them in between the summer camps and assisted in fundraising efforts. In 1990 he was awarded the State of Florida’s highest award for a cancer survivor, the Courage Award.
However, the treatment that saved his life had taken its toll, including some bladder and bowel function challenges. In 2002, he developed a condition related to the high doses of radiation he had received. A colo-rectal reconstructive surgery was performed that resulted in an ileostomy, designed to be temporary during the healing process. After eight months with the temporary ileostomy, reversal surgery was performed. Due to the pelvic damage caused by the radiation, the surgery had failed. In 2003, another surgery was performed resulting in a permanent transverse colostomy
When Johnnie left the hospital, he was introduced to closed-end pouches. He began using both drainable and closed-end pouches, but moved to closed-end full-time as he felt doing so improved his quality of life. Still, there was the challenge of disposing of the pouches – there was no truly odor-proof means of doing so, which was a dilemma for a person like Johnnie, leading an active life
Johnnie continued to work, to pursue recreational activities such as golf and fishing, and kept trying to think of a solution. At last, he came up with the idea for a sealing mechanism for used pouches, devised and developed it himself and started experimenting. Finally the day came when he knew he had found it, a simple solution to a challenge faced by anyone with an ostomy. He founded OstoSolutions in order to share his discovery with the ostomy community, believing that everyone should have access to a better quality of life, free from the odor concerns that prevent so many from fully pursuing activities that they love.
Just so we’re clear, you should know that I am not paid to publicize this product. I just think you might want to check it out.