2 Comments

Purpose

To my new readers:

I would like to introduce you to some of my lovely fellow bloggers. My links page is a work in progress, so I hope you check back occasionally to see the new additions. My goal is to show you that you are not alone, and I would also like to provide starting points for research, discussion, and encouragement.

If you have any questions or would like to get more involved in the IBD community, feel free to email me (partiallyunstuffed@gmail.com) or find me on Facebook. For basic tips, check out my entries on getting involved and online research. I wish you the best of health. Thank you for stopping by!

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2 comments on “Purpose

  1. My name is Kim and just wanted to let you know that i too have had Crohn’s disease since I was 9,at first i had Mono w/Miocarditis and then developed (not sure of exact spelling)eirothemanordosum..after 2yrs of testing for everything from arthritis reumatoid to lupus my dr finally did a barium and they found the Crohn’s by that time i weighed about 60 lbs and was very sick, I was diagnosed in 1978 and had my first resection when I was 12, actually it was my 12th birthday.After that i was maintained for a few yrs on prednisone and antibiotics also had a bland diet.when I was 22 (1988)I had my second resection done again on my birthday!!! and then spent many years on TPN..Feeding tubes..cantor tubes,etc.any new wonder drug or new med they came up with I either had an allergic reaction to or just didn’t work. I had a child when I was 33 after many years of trying and miscarrying!! Then I moved from Long Island to Georgia in 2004 and had my permanent illeostomy done at Northside Hospital by a wonderful Dr. Martha Ferguson.I guess what I am trying to say is I think it’s great that you have a positive outlook and will never let this disease control your life!! I have always been that way about mine, no matter how sick i was or how many months i spent in the Hospital..and am happy to say that I have been Medication and Crohns free for 8 years now and can pretty much eat and drink almost any thing i want and at 46 have finally gained the weight my Dr.’s had tried to get me to gain half my life..so with that I would like to wish you all the best and say KEEP POSITIVE!!!!

    • Hey Kym, thanks for posting and sharing your story! You’ve been through some serious challenges. My goodness. I am so glad that after so many years of constant struggling, you are doing better now. It’s encouraging for me, and others who are currently feeling lousy, to hear stories like yours.

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