Day 4: Disclosure Post

How do you decide what to share?

For starters, I just went out in public wearing a sweatshirt that says “Ask me about my Crohn’s disease.” And since I share blog updates on my personal Facebook page, my healthy friends can see all sorts of unflattering stories and photos. Being open about my health isn’t always easy, but it is mostly worth the effort and risk. Sometimes people are jerks, so we just have to forget about them and move on.

My health conditions might, in theory anyway, be easily concealed someday. Nobody can tell I’m struggling just from a superficial glance, but my issues come up in conversation pretty early on. I suppose I could lie and throw out some silly responses to health-related questions, but I’m not good at lying and I am not creative enough to gracefully skirt the truth. If you have any ideas for glossing things over, please leave them in the comments section!

Sometimes I am uncomfortable talking about my current situation because I’m worried about being perceived negatively. I end up disclosing the basics to everyone I have to interact with for a while, and I refrain from the gory details unless they are very curious and ask specific questions.

I’m afraid I do not have any useful advice for one of the top social worries in the IBD, ostomy, and chronic illness communities: talking about health in a dating context. I know my limited experiences have been less than ideal. A few men who have expressed interest in me are pansies who can’t handle physical malfunctions, and some are creepers who sorta seem fine with my health issues, but they’re not so good with social boundaries.

I don’t bother hiding my physical conditions because people are going to find out the basics anyway. I don’t have the energy. Speaking of which, I apologize for the quality of this post. I’m tired.


4 comments on “Day 4: Disclosure Post

  1. When asked anything about my UC I tend to just go ‘it’s alright.’ If someone insists on talking about the embarrassing details in public, I tell them to just google it. When people say to me that IBD isn’t really that serious, I turn around and hobble away 🙂

    • Thanks for posting your strategies! If I know the person is just a casual acquaintance and they ask I’m doing, I either redirect and comment on something good about the day (“It’s not my best day, but I’m glad to be out and about.”) or give a very brief update, especially when they know I’ve been really sick or in the hospital. I used to tell people to Google things, and it still works sometimes, but I once made a memorable mistake. While chatting with classmates in a library, somehow my health came up. I told someone to Google “ileostomy,” and the reaction was so entertaining and loud that the others had to see everything too. Lots of questions followed! I hope you don’t encounter too many people who don’t think IBD is serious! I always get a little flustered when that happens, but I remind myself that they are ignorant.

  2. You’re tired, but you still posted……and I thank you. 🙂

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

the crohn's diary

A little diary, all about Crohn's and other form of IBD!

The big stoma bucket list

after a life crippled by Crohn's and Colitis my 101 stoma bag lady challenge

Erica's Tummy Blog

A blog of my life colored with the dealings of Crohn's disease and more

Colitis and Crohn's

Sharing and spreading awareness about Colitis and Crohn's disease.


connect ~ inspire ~ support

Crohn's Knows

Taking Time To Talk Crohn's and IBD

Companion Magazine for IBD

Bringing the IBD world together, one story at a time

Tranquil Tummy

Blogging my journey to cure myself of Crohn's Disease

autoimmune barbie

Barbie girl living in an Autoimmune world.

hopefaithcurecd12's Blog

My journey, a way of coping with a chronic illness


4 out of 5 doctors recommend this WordPress.com site


Helping to create happy ostomates.

Crohn's Allogeneic Transplant (Allo HCT)

Allogeneic bone marrow transplant to cure Crohn's disease – also called Allogeneic Hematopoietic Cell Transplantation (Allo HCT)


25 year old Ex- Ostomate, living with Crohn's and writing about it. Advice, Food and IBD Life

The Fight for Health

Journaling my fight with chronic illness through food, fitness, family and a fledgling martial arts journey.

Tree and Leaf: Honesty. Health. Humor.

Let's be real honest about immune/autoimmune diseases for a minute


outrunning Crohn's.. my journey with IBD

My IBD Life

Shit happens, Wipe your ass and get over it


To live is an act of courage.

The Irrefutable Opinion

Assaults on the Casually Mundane by K. Jean King

The Chronic Adventurer

Finding a silver lining from his IBD

shine & Smile

Inspire. Dream. Love. & Keep Smiling Lovlies

Crohnie Man

Everything IBD and Crohn's

Mind Your Body

encouragement and advice for folks with rebellious intestines

spilling my guts

encouragement and advice for folks with rebellious intestines

Whoops! Thaila has moved!

Go to http://thailaskye.me.uk

talkaboutguts.blogspot.com ….

encouragement and advice for folks with rebellious intestines


Living an ostomate's life with humour and inspiration

Living with the Unexpected

There are over 1,000,000 people living with an ostomy in the United States. I am just one.

The FlowryLife

Living mindfully thanks to IBD

Amazing Adventures (ostomy included)

Courage Inspiration Empowerment

The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined


My disastrous health, weird life and ongoing story of intestinal failure.

Ask Ansley

My Crohn's Story

Tissue Tales

My journey, navigating through life with a Connective Tissue Disorder.

Dr. Abby Caplin's "Permission to Heal"

Practical Loving Ways to Heal through Chronic Illness


Nutrition: a different outlook

Gotta Go: Our IBD Lives

Two Sisters - Two Differnet Lives - One IBD Diagnoses

Hungry Girl Eats

Notes on the care and feeding of body, mind and spirit.

My Cranky Gut

Misadventures with Crohn's Disease and the Specific Carbohydrate Diet

United Ostomy Association of Canada

Live Life to the Fullest!

Evicting My Misbehaving Colon

IBD and J-pouch Adventures


The tales of Ulcerative Colitis, a stoma & J-Pouch

30 Days with Juice

A fine WordPress.com site

Lauryn and Lulu

My journey with Lulu (my stoma) & battling Crohns Colitis


My Journey

%d bloggers like this: