Leave a comment

Day 14: Dealing with Negativity in Our Communities

Participants in health-related communities have common bonds, but vastly different opinions can spark heated discussions quickly. I enjoy debates, but sometimes I get flustered, as I’m sure we all have at some point. I have a lot to learn, but I have a few strategies for dealing with negativity.

So far, this blog has been criticized for two things, but I’m not too worried about it, because these folks don’t read blogs anyway. They think this sounds like a waste of time, and it makes my personal life/health conditions too publicly accessible. I don’t write for them. I write for people with chronic illnesses, ostomies, and a few healthy readers who want to gain some insight on caring for family and friends.

The negativity I encounter is mostly in Facebook groups or discussion forums. Here are some handy tips if you find yourself cursing at your computer screen.

1. When in doubt, research the topic and arm yourself with facts. 

I was once told to stop spreading bad information. This is certainly a concern for me, so I did some research and posted the things I found. The subject is one of the most controversial topics in the IBD community: Whether or not a person can have Crohn’s disease, ulcerative colitis, and IBS at the same time. Boy, do people get riled up over this one. The answer is no, by the way.

2. Understand that when people are passionate, they can come across as rude to everyone who disagrees.

Tone is lost in text-based discussions, and I think some people might be bolder online than they are in person. Political comments and conversations in the chronic illness community are extremely passionate because we all have so much at stake. Lately I have seen some hateful things, but I remind myself that we are all just trying to survive. If you feel like you can’t speak up about disagreements, step away from the situation and process what you want to say. That way, when you come back, you’ll have a clearer idea of how to express yourself without coming across as mean.

3. If someone insults you or your beliefs, don’t take it personally. 

This is much easier said than done. I find it helps to remind myself of positive comments to counteract the negative ones, and to divert my attention elsewhere. When I post questions about getting a job and hiding my illness, I usually get ridiculed by somebody for publicly subscribing to Facebook pages and participating in groups. They think it’s crazy to be so open about everything, and they pride themselves in their ability to hide their issues when they choose to.

4. Support fellow community members

I tend to step up if someone is getting picked on, and I love it when we look out for each other.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

the crohn's diary

A little diary, all about Crohn's and other form of IBD!

The big stoma bucket list

after a life crippled by Crohn's and Colitis my 101 stoma bag lady challenge

Erica's Tummy Blog

A blog of my life colored with the dealings of Crohn's disease and more

Colitis and Crohn's

Sharing and spreading awareness about Colitis and Crohn's disease.

bringtheshine

connect ~ inspire ~ support

Crohn's Knows

Taking Time To Talk Crohn's and IBD

Companion Magazine for IBD

Bringing the IBD world together, one story at a time

Tranquil Tummy

Blogging my journey to cure myself of Crohn's Disease

autoimmune barbie

Barbie girl living in an Autoimmune world.

hopefaithcurecd12's Blog

My journey, a way of coping with a chronic illness

childgastro

4 out of 5 doctors recommend this WordPress.com site

VeganOstomy

Helping to create happy ostomates.

Crohn's Allogeneic Transplant (Allo HCT)

Allogeneic bone marrow transplant to cure Crohn's disease – also called Allogeneic Hematopoietic Cell Transplantation (Allo HCT)

Itsgutsandglory.co.uk

25 year old Ex- Ostomate, living with Crohn's and writing about it. Advice, Food and IBD Life

The Fight for Health

Journaling my fight with chronic illness through food, fitness, family and a fledgling martial arts journey.

Tree and Leaf: Honesty. Health. Humor.

Let's be real honest about immune/autoimmune diseases for a minute

#purpleproject

running to the bathroom.. my journey with IBD

My IBD Life

Shit happens, Wipe your ass and get over it

skylersthelimit

To live is an act of courage.

The Irrefutable Opinion

Assaults on the Casually Mundane by K. Jean King

The Chronic Adventurer

Finding a silver lining from his IBD

shine & Smile

Inspire. Dream. Love. & Keep Smiling Lovlies

Crohnie Man

Everything IBD and Crohn's

Mind Your Body

encouragement and advice for folks with rebellious intestines

spilling my guts

encouragement and advice for folks with rebellious intestines

Whoops! Thaila has moved!

Go to http://thailaskye.me.uk

talkaboutguts.blogspot.com ….

encouragement and advice for folks with rebellious intestines

THE OSTOMY FACTOR

Living an ostomate's life with humour and inspiration

Living with the Unexpected

There are over 1,000,000 people living with an ostomy in the United States. I am just one.

The FlowryLife

Living mindfully thanks to IBD

Amazing Adventures (ostomy included)

Courage Inspiration Empowerment

The Caged Bird Still Sings

Striving to be content with the life I have been given, instead of the life I had imagined

BedEleven

My disastrous health, weird life and ongoing story of intestinal failure.

Ask Ansley

My Crohn's Story

Tissue Tales

My journey, navigating through life with a Connective Tissue Disorder.

Dr. Abby Caplin's "Permission to Heal"

Practical Loving Ways to Heal through Chronic Illness

jennovafoodblog

Nutrition: a different outlook

Gotta Go: Our IBD Lives

Two Sisters - Two Differnet Lives - One IBD Diagnoses

Hungry Girl Eats

Notes on the care and feeding of body, mind and spirit.

My Cranky Gut

Misadventures with Crohn's Disease and the Specific Carbohydrate Diet

United Ostomy Association of Canada

Live Life to the Fullest!

Evicting My Misbehaving Colon

IBD and J-pouch Adventures

stanleystoma

The tales of Ulcerative Colitis, a stoma & J-Pouch

30 Days with Juice

A fine WordPress.com site

Lauryn and Lulu

My journey with Lulu (my stoma) & battling Crohns Colitis

crohniechaos

My Journey

%d bloggers like this: