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Resources: Facebook Things Part 3

I hope you enjoy this installment in my Facebook series. I am pleased to introduce you to some of the goodies that enrich my newsfeed. Parts 1 and 2 have more links.

Chronic Illness

Be Chronically Well: Empowerment to live well despite chronic illness

Bottled Time– Living, Loving, and Laughing Through Chronic Illness and Pain: Fun websites and photos.

Chronic Perseverance: “Awareness, encouragement, and inspiration.”

Disease on My Sleeve: “A bright new organization dedicated to supporting young patients with invisible chronic illnesses”

HopeKeepers for Chronically Ill: a Christian ministry that offers encouragement and resources for everyone coping with illness and pain.

I Have a Bad Tummy With an Optimistic Mind– Chronic Illness Support: Kelly’s posts brighten my newsfeed. Uplifting photos and quotations make me smile.

Sick Girl Beauty Vlog: “Sick does not have to equal unconfident, unattractive, or ugly.”

WEGO Health: Community and resources for health activists.

Inflammatory Bowel Disease

Bathroom Angels– Crohn’s and Colitis Blogs and Vlogs: A collection of social media goodies from IBD activists. This is a great way to learn about a variety of new perspectives.

Blood Poop and Tears: The Facebook page for Jackie’s blog.

Crohnie Bologna IBD: Christy also has an ostomy. This page provides updates on her blog and videos.

Crohn’s and Colitis Foundation of America (CCFA): “Providing Hope. Inspiring Action.” I love the CCFA so much. That’s all I have to say about that.

Girls with Guts: I wrote about them here. The women featured on the GWG site all have empowering stories to share.

The Great Bowel Movement: These awesome ladies post jokes, activism opportunities, helpful articles, and whatever questions are on their minds.

Gut Inspired: A fabulous IBD page that includes lots of videos and resources.

The Gutsy Generation: “an initative by the Crohn’s and Colitis Foundation of Canada’s (CCFC) Youth Advisory Council (YAC) to foster awareness, support and action about Inflammatory Bowel Disease” Their hilarious pictures get me laughing out loud.

forward is a pace: The Facebook page for Lauren’s blog.

IBD or known as Inflammatory Bowel Disease: A page that aims to help patients and their families find information about Crohn’s disease and ulcerative colitis.

Let’s Talk IBD: Maggie has Crohn’s disease and an Ileostomy.

Living with Crohn’s Disease– Healthline: Medical articles and reader questions

Inflamed & Untamed- Crohn’s/Colitis Support: Sara posts links to her blog, but she has also created a community by regularly posting reader questions for everyone to respond.

Intense Intestines Foundation: “Helping and connecting those with Crohn’s disease and ulcerative colitis. Never Stay Quiet!” In addition to his work in the online community, Brian organizes outdoorsy activities and fundraisers.

Strong People Fighting Crohn’s and Colitis

Ostomy

Awestomy: “Ostomy apparel with personality and attitude.”

C&S Ostomy Pouch Covers: They want to help ostomates feel comfortable and confident.

Detoured Fashion– Ostomy and IBD support with a fashion twist

Giving Ostomy a Voice

Ileostomy and J-Pouch Support Network

It Happens– A Support Group for Ostomates and IBD Patients

Loud and Proud with an Ostomy: Promotes self-confidence and positive awareness efforts

My Doctor Knows Me Best From Behind: Ostomy and IBD Support. The Facebook page for Full Frontal Ostomy.

Ostomyland: “Blog and community portal for ostomates around the world.”

Ostomy Secrets: updates from this great ostomy clothing company

Raising Ostomy Awareness

The Stolen Colon: Stephanie’s Facebook page for her blog about her life without a colon.

Stomawise: A UK-based support network for ostomates. The page supplements their website.

United Ostomy Association of Canada: Updates about UOAC activities.

Vanilla Blush: Lingerie for ostomates.

 

5 comments on “Resources: Facebook Things Part 3

  1. Ahhhh Another Thanksgiving, so much wonderful food, so much pain……….

    I hope that you have a great day though Allysa!

    • Thanks, Philip! I know what you mean about Thanksgiving being painful. I used to get sad when I couldn’t eat all the wonderful food. I ate turkey, mashed potatoes, cranberry jelly, and pumpkin pie though. Yum! I’m going to work on some tips for enjoying the holiday season and get it posted before Christmas. I hope your physical issues don’t interfere with your Thanksgiving celebrations too much. Whatever happens, remember that you always have a great community to support you and help out in any way we can!

  2. Well you know how different foods affect us all differently. Every Thanksgiving or Christmas I would be down for three days, surviving only with Ensure. But I had eaten so many foods I didn’t know what was causing it. Nothing fried or oily?? Then one time I ate turkey in the summer time without all the other traditional things —down again. So THAT was the culprit. I still had trouble again the next holiday, my mother makes the most wonderful dressing–with the drippings from the turkey! So now it’s baked chicken with dressing made from the chicken drippings. It’s all good. Turkeys are for pets…

    Maybe this will help somebody

    (I had to work today anyway, so I wasn’t tempted by the long buffet of food, just a few leftovers when I get home, I hope anyway!)

  3. This is fantastic! I’m so glad I found your site. I’m coming off of my 2nd surgery for Crohns and realizing that it’s time to end the isolation. Can you believe I don’t know anyone in real life who has Crohns?? Thanks for all the resources. I just started a blog and may share some of the links if that’s alright with you. (PS – love your GWG toilet charm bracelet. Too Funny!) – Melissa

    • Thank you for writing, Melissa! I met people in real life at Camp Oasis, and a life-changing coincidence at college. I’m very lucky to know my gutsy buddies, and I hope you get to know some of them too. I am happy to hear you found some good resources, and feel free to share them on your blog. The more, the merrier!

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