I’ll get around to the descriptions of these blogs at some point. Sorry guys!
By the way, when I list Ulcerative Colitis or Crohn’s disease next to the site names, I am not suggesting that the blog applies exclusively to one disease or the other.
A Guy With Crohn’s: Crohn’s Disease
“Just a guy living life with Crohn’s Disease.”
Jeff hopes to encourage more men to take up IBD advocacy. In one of his entries, Jeff highlighted work from The Men of IBD, and I am so glad he did, because the gentlemen seem to be outnumbered. Another personal favorite is the entry about IBD and Relationships.
The Anonymous Ostomate: Ostomy (Ileostomy), Crohn’s Disease
Leslie wants to make it clear that she does not define herself by her illness or her ostomy, and she prefers to keep her health information private. She admires ostomates who talk about their ostomies and fight stigmas, but she wants to be seen for everything she is besides her physical situation. You should all read her story, whether you have an ostomy or not, because she does such a great job of affirming each person’s comfort level with regard to their health. Her journey has not been easy, but she’s doing all right and she offers a fairly unique perspective (for a blogger).
Arsetopia: Familial Adenomatous Polyposis (FAP), Barnett Continent Intestinal Reservoir (BCIR), Interstitial Cystitis (IC)
You may not have heard of Vanessa’s health conditions, but they are more common than I would have expected. I have a few friends with FAP whose frustrations over lack of public awareness made me want to learn more about it. She also has a food blog.
Blood, Poop, and Tears: J-Pouch, Multiple Sclerosis, Ulcerative Colitis
Jackie is a wonderfully honest writer, and you should go check out her blog. Oh, and she’s also hilarious. This is the one of the only blogs that makes me laugh out loud on a regular basis. Along with Charis of Full Frontal Ostomy, Jackie runs Girls With Guts, a group that shares the stories of brave young women empowering others to accept and embrace their health challenges.
C&S Pouch Cover Blog: Ostomy
This blog features several ostomates writing about various medical, emotional, and social topics related to ostomies.
Forward is a Pace: Ulcerative Colitis, Fitness, CCFA Team Challenge
“One Gutsy Girl Chasing Her Dreams.”
Lauren’s blog has such a friendly tone, and her love of running is almost contagious. I like how she shares her thoughts on her triumphs and frustrations because I have a great appreciation for people who are willing to acknowledge the whole reality of living with a chronic illness and chasing their dreams.
The Gutsy Generation: This blog features various contributors writing about anything and everything IBD-related.
According to the site, “The Gutsy Generation is an initative by the Crohn’s and Colitis Foundation of Canada’s (CCFC) Youth Advisory Council (YAC) to foster awareness, support and action about Inflammatory Bowel Disease (IBD). It’s time to speak out and get up – coming out of the bathroom stall to find a cure!”
Inflamed and Untamed: Crohn’s Disease, J-Pouch
Sara is a delightful activist whose work includes a blog, two YouTube channels, and a website. Self image and self esteem are common themes throughout her writing and videos. For more goodies, check out Inflamed and Untamed Videos and Sick Girl Beauty Vlog (tips for sick girls to look great even when they feel gross).
Intense Intestines: The blog portion of this site features a combination of news stories, updates on awareness/activism campaigns, personal stories, and thoughts on coping with IBD.
Let’s Talk IBD: Crohn’s disease, Ostomy (Ileostomy)
Maggie’s YouTube channel makes bowel issues seem downright adorable sometimes. Ladies, check out her makeup and fashion videos! (My favorites: “How to Look Healthy, Even When You’re Not!,” and “Look Hot with that Ostomy!”) and Gentlemen, you might want to stick to the product reviews, chats about whatever is on her mind, and general informational videos.
Living with the Unexpected: Ulcerative Colitis, Ostomy
“There are approximately 750,000-1,000,000 people living with an ostomy in the United States. I am just one.”
Caitlin shows her compassion for others and her passion for advocacy throughout her blog. She is simply delightful, so I hope you go read her work because I have a feeling she can brighten anybody’s day.
My Cranky Gut: Crohn’s disease, Specific Carbohydrate Diet, Low Dose Naltrexone
Damion shares adventures and misadventures of living with a cranky gut and learning to manage it. If you’re on the SCD diet, check out the handy restaurant reviews.
My Pink Button: Crohn’s disease, Ostomy (Permanent Ileostomy)
“Life with an ostomy. Candid, not sugar-coated. Empowered, not embarrassed.”
A good starting place for this blog is the entry where she tells her story and explains why she started blogging. For her, it’s part of an honest self-reflective process that fosters dialogue with readers. I like her thoughts on the effects an ostomy bag can have on identity: “I am not my bag. My bag is not me.”
No Guts and All the Glory: Crohn’s disease, Ostomy (Permanent Ileostomy)
“Dedicated to fashion, boosting self-esteem, making women feel sexy in their skin (again), and raising IBD (Ulcerative colitis, Colitis, Crohn’s disease) and ostomy awareness.” For her story and details about her mission, check out her intro.
Amber reaches out to women through fashion advice, encouragement, and stories. She also invites contributions to her site, and she features other activists in some posts. One of the things on my to-do list: Read everything on this site. I’m intrigued.
Healthline: 11 Best Crohn’s Disease Blogs 2012
Nutrition and Fitness
Many of the blogs listed on this page occasionally discuss nutrition and fitness, so don’t rule them out! This category just features writers who focus more heavily on these topics.
Active Ostomates: Colorectal Cancer, Ostomy.
Clinical Alimentary: This blog’s author is a dietary advisor to the IBS network. She hopes to spread the word about evidence-based treatments and dispel nutrition myths.
Megan’s Mind: “A blog about natural health, alternative medicine, whole foods and healthy living.”
I Be a foodDie– Cooking with Crohn’s and Colitis: “Two amateur cooks explore the world of cooking for a Crohn’s and Colitis Diet.”
The Paleo Nurse: “Healthing Through Real Food.” Katy started this blog as a “way to document [her] journey in utilizing nutrition to treat [her] own gastrointestinal and autoimmune disease (Crohn’s).”
Run Stronger Every Day: “Change your life. Go for a run.”
Syrup and Salt: All sorts of healthy recipes.
Gutsy Warriors Just Documenting Life
Assume the Position: “Comic relief in the world of inflammatory bowel disease.”
Colon Talk: “Making cancer treatment sexy since 2012.”
The Crohn’s Diary: Richard documents his life with an illness and shares thought processes.
Crohn’s Disease and My Experience… A Crohnie’s Life: Jason shares his story and spreads awareness.
Crohn’s Disease- Living with Crohn’s Disease Blog: “Battling Crohn’s as a runner, soccer player, father, husband, and professional.”
Crohn’s Disease Blog: Awesome Life of Crohnsboy
Crohn’s Disease- Leaving the Seat Down: “A frank, humorous discussion about living with Crohn’s.”
Crohn’s Quine: “The life and adventures of a Crohnie.”
Evicting My Misbehaving Colon. “IBD and J-Pouch Adventures”
Failing at Crohn’s: “Just another blog about a shitty disease.”
The Ileo Atlas: “Reflections on life by a girl minus a colon.”
It’s Elementary, IBD-er… Sarah writes about “Crohn’s and every little magical moment that comes along with having it. Prepare for sarcasm at its finest.”
Keeping Things Inside is Bad for My Health: “Living with IBD and more.”
Mama’s Got a Stoma: Crohn’s disease, Ileostomy
My Baglady Life: Wendy’s description cracks me up. “This blog isn’t about poo, it’s about me, health, what I think, general stuff – just my life. And the fact that I have a bag while I’m living it. And a bit about poo.”
The Sick Adventures of Semi-Colon Girl: Julie tells her “Crohnie tale one post at a time.”
Sovereign Ostomy: “Sharing the glory of the Sovereign God and the joys of family while living with an ostomy .”
Spotlight Ostomy: This blog’s purpose is “to educate, support, and raise awareness to dispel the myths that surround being an ostomate.”
Stanley Stoma. Ulcerative Colitis, Ileostomy. Meg, one of the co-founders of the Facebook group My Bag & I, hopes to help other people in similar situations.