Handy Websites

For everybody with health issues:

Be Chronically Well: Tina’s work is uplifting and practical. I just found her website recently, and I can tell you with great confidence that if you’re struggling with chronic illness, you need to check this out. The main website has lots of resources, including a blog, and you can also find goodies on the Facebook page. In her own words, Tina means for her site to be a “virtual place of comfort, support and empowerment that is focused on helping you to live a full and vibrant life despite having a chronic illness.” Living with a chronic illness makes me sad, and I get stuck in ruts, so I can use all the help I can get! Even if you’re less cranky than me, you should still explore Tina’s work. We all have a lot to learn.

ChronicBabe: This site is a community of women living with a wide variety of chronic health conditions. They offer emotional support and practical tips, and I am confident this site is useful for guys too. Don’t let the bright colors scare you away!

HealingWell.com: “Community. Support. Resources.”

Try not to be overwhelmed with this site! It’s got resources and discussion forums for a variety of health conditions, a blog, videos, and a newsletter. I like it because my multiple physical malfunctions get confusing, and I have found answers to my weirdest questions here.

Healthline“Connect to Better Health”

This site is similar to WebMD in some ways, but I currently prefer Healthline for its more in-depth articles that branch out into social and emotional topics. I also subscribe to its Facebook news feed for people with Crohn’s disease, which they use both to post articles and to post questions from readers. This resource is a nice fusion of clinical and personal healthcare.
Directory of Diseases and Conditions
: Each learning center offers information about the basics of the condition, healthy living habits, treatments, and all sorts of ways to improve your life.

For Ostomates:

C3Life: “A website dedicated to helping people with ostomies live their lives to the fullest.”  This Hollister-sponsored site has bits of basic advice on a wide variety of topics, and a very helpful section entitled “Ostomy Basics.” It includes explanations of medical terms that you might encounter with an ostomy, and it also has info on preoperative and postoperative care.

Eakin Cohesive: Skin care products and guidance.
The site features a blog, videos, and an easy link to order samples.

Stomawise: “The UK Support Network for Ostomates.”

United Ostomy Associations of America: “The UOAA is a national organization to provide support, information and advocacy to ostomates and their caregivers.”

The Discussion Board is a great place for exchanging tips and advice about the medical and emotional issues that you may encounter as an ostomate. They also have downloadable informational guides for each type of ostomy, as well as a few miscellaneous topics. I found these resources useful when I was getting ready for and recovering from surgery.

For Crohn’s and Colitis conquerors:

IBD U: Transitioning from adolescence to adulthood is challenging enough. This site helps with the unique challenges faced by young people with IBD. There’s lots of practical advice on handling your own healthcare away from home.

Healthline- Crohn’s Disease: This is a great educational site! I am fascinated, and I c0uld really spend a lot of time on here. I’ve had IBD since 2003, and I keep finding new information here. Every time you click on something, it suggests other helpful pages. The broad categories it covers are: Basics, Assess Your Symptoms, Eat Better, Find Treatments, Lifestyle, and Get Support. Have fun exploring!


2 comments on “Handy Websites

  1. Hi Alyssa: I think you have done a fabulous job with you gathering all this info together under one site…I for one would like to say “thank you” for all your effort and hard work! How have you been? Let me hear from you, OK? Take care girl. Keep up the good job with informing the masses! lol Ciao from Robin (fellow buddy from The Univ. of Chicago Medical Center)

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